Are you one of the 1 in 5 people in the UK who experiences pain that has gone on for longer than 3 months?

You are not alone…

You can make changes from today that will improve your mind and movement…

Here’s a background to the resources…

The Q Lab and Mind are currently working with four organisations to develop and test small-scale solutions to improve care for people with both mental health problems and persistent back and neck pain.

Kay Stevenson from Keele University introduces the problem area they will be exploring and what they hope to achieve through the process.

Patricia Callaghan is a volunteer and public member of the BeeFree team.
If you have ever thought of getting involved in the creation and development of an improvement project like BeeFree, why not take a look at her experience.

BEEFREE PROJECT TEAM

CORE TEAM:

Kay Stevenson

Consultant Physiotherapist
Senior Knowledge Mobilisation Fellow
Honorary Professor Musculoskeletal Care and Leadership

Kay Stevenson is a joint lead of this project. She is a Consultant Physiotherapist within the Midland Partnership Foundation Trust, a Senior Knowledge Mobilisation Fellow within the Impact Accelerator Unit, Keele University and an Honorary Professor in the Medical School, Keele University.

Within her clinical role she is the Clinical Lead for a large Musculoskeletal Interface Service with responsibility for quality of care, clinical competency, educational developments and strategic direction of the service. She clinically leads this large multidisciplinary team of clinicians including Rheumatologists, General Practitioners, Advanced Practice Physiotherapists and Podiatrists. She has been involved in service and pathway re-design to ensure they are evidence based.

Within her Senior Knowledge Mobilisation and Honorary Professor role she is responsible for embedding the very best evidence in clinical practice to improve the care of patients with musculoskeletal disease. This currently involves rolling out and mapping how and where stratified care for low back pain is being used internationally. She is responsible for implementing the NIHR Themed Review: Moving Forward – Physiotherapy for Musculoskeletal Health and Wellbeing across Staffordshire.

She formed the very successful Musculoskeletal Research Facilitation Group, known locally as the CAT group. This multidisciplinary group of academics and clinicians have asked and answered over 80 clinical questions and improved care as a result. This process has also led to 3 funded research trails and was awarded a British Society of Rheumatology Award for Outstanding Clinical Practice in 2016.

She is currently a Versus Arthritis Clinical Champion undertaking a bespoke Leadership programme with Ashridge Executive Education.

Tom Kingstone

Lecturer in Mental Health and Wellbeing, Keele University

Dr Tom Kingstone is a Lecturer in Mental Health and Wellbeing at the School of Medicine, Keele University and Research Associate in Mental Health at the Research and Innovation Department, Midlands Partnership NHS Foundation Trust. Tom has expertise in qualitative research and a special interest in mental health research, particularly, topics that consider long-term physical and mental health problems together. Tom completed his PhD at Keele University in 2017; this was funded by a Keele ACORN Studentship. His doctoral research explored the lived experiences of persistent pain among rural dwelling older adults to identify factors that support people to age well. Presently, Tom is a key contributor to mental health and wellbeing research at Keele University, supporting a number of externally funded research projects; he also actively supports staff at Midlands Partnership NHS Foundation Trust to engage in research through learning and development innovations.

Nicola Evans

Impact Accelerator Unit Manager, Keele University

Nicki is the Project Manager for BeeFree. Her wider role is to support the evidence to practice gap by managing the operational delivery of key innovation projects for the Impact Accelerator Unit supported through the School of Medicine, Keele University.

She takes the lead for the project management of all impact projects and innovations delivered by the unit as well as supporting engagement with stakeholders within the health arena, collaborations with industry partners and support for the dedicated patient involvement group for the unit, LINK (Lay Involvement in Knowledge Mobilisation). She graduated from University of Liverpool in 2001 with a degree in Nutrition and has worked in the NHS for 10 years in the public health arena prior to moving to the unit to enhance her project management skills.

Laura Campbell

Impact Accelerator Unit Knowledge Broker, Keele University

Laura has worked on guiding the development of the BeeFree website, led the Community of Practice that developed the animations and provided operational and communications support. As a Knowledge Broker for the Impact Accelerator Unit in the School of Medicine, Laura works with academic colleagues and external stakeholders (health and social care professionals, patient and public members) on activities to accelerate the impact of the Faculty of Medicine and Health Science’s (FMHS) research into policy and practice.

With a background in modern foreign languages (BA Dual Hons University of Bath, 2008), journalism and patient advocacy Laura coordinates public involvement in Knowledge Mobilisation (LINK group), co-produces patient facing evidence based resources and develops knowledge exchange activities and communication strategies for the unit for scaling up and scaling out high quality research evidence across boundaries. Laura is a committee member of The Haywood Foundation, a trustee of the North Staffordshire Orthopeadic Research Foundation, a finalist in the 2018 Nursing Times Awards and the Lead National Representative for the Scoliosis Association UK. She is currently undertaking an MPhil in Knowledge Mobilisation as part of her role.

PLUS

Professor Krysia Dziedzic

Director Impact Accelerator Unit; Professor of Musculoskeletal Therapies Versus Arthritis; NIHR Senior Investigator; Adviser NICE Fellows and Scholars programme; Hon. Implementation Consultant, Midlands Partnership Foundation Trust, Staffordshire

Krysia is the Director of the Impact Accelerator Unit and Professor of Musculoskeletal Therapies Versus Arthritis. Krysia commenced a four-year term as National Institute of Health Research (NIHR) Senior Investigator on 1st April 2019 following a four-year NIHR Knowledge Mobilisation Research Fellowship exploring the implementation of NICE guidelines for the care and management of osteoarthritis in primary care. Krysia is now an Adviser to the National Institute of Health and Care Excellence (NICE) Fellows and Scholars programme. She represents non-medical health professionals on guideline committees for osteoarthritis and implementation, including for NICE and EULAR (European League Against Rheumatism). Krysia is a member of the Osteoarthritis Research Society International (OARSI) Joint Effort Initiative steering committee, where she Chairs the Implementation group. Krysia is also a member of the Steering Group of OARSI Osteoarthritis Trial Bank for individual patient data meta-analyses. A Fellow of the Chartered Society of Physiotherapy, and NIHR Health Research Mentor, Krysia is also a member of the NIHR Knowledge Mobilisation Alliance.

Carolyn Chew Graham

Carolyn Chew-Graham is a GP Principal in Central Manchester, Professor of General Practice Research at Keele University, Honorary Professor of Primary Care Mental Health at Midlands Partnership Foundation Trust, Honorary Professor of Primary Care, University of Manchester, and Visiting Professor at the University of York.

Carolyn’s main areas of interest and expertise include the primary care management of people with mental health problems, multiple health conditions and unexplained symptoms; and the mental health and wellbeing of clinicians. She has qualitative research methods expertise, drawing on theories from social sciences and psychology, but always with a focus on clinical practice – trying to answer questions that are important to patients, their families, health care professionals and the NHS.

Carolyn chairs the RCGP ‘Research Paper of the Year’ panel and is ‘Curriculum Advisor, Mental Health’. She is Chair of the Society of Academic Primary Care.

Carolyn is currently a member of the NICE Clinical Guideline Development Group Depression (update) and a standing member of a NICE Quality Standards Advisory Group – work which directly impacts on commissioning decisions and patient care. She is Editor-in-Chief of the journal Health Expectations.

June Brammar

June was seconded from the Beth Johnson Foundation to the Haywood Foundation, based at the Haywood Hospital in 2012. There she set up and developed the Patient Information Education and Resource Centre (PIER). Staffed by volunteers, the PIER provides patients, their families, and carers access to information on arthritis and related conditions and signposts to other relevant organisations and services.

June joined the Beth Johnson Foundation in 1997 and as a Health Improvement Coordinator, she developed the Active in Age programme which trains people to deliver community led physical activity sessions. June also developed a Falls Prevention Programme for NHS Stoke on Trent and has written several consultation reports for local authorities.  In 2010 June gained a Masters’ Degree in Community Practice and Promoting Public Health at Staffordshire University.

June is a member of the Haywood Foundation and sits on several health research and patient user group forums.

In the BeeFree project, June has helped with the repository, was a part of the Community of Practice sessions and engaged with patients and PEIR volunteers to gain their input, comments and views about the content and presentation of this project.

Patricia Callaghan

Volunteer Patient Information Centre (PIER) Haywood Hospital

I recently retired from my career in the NHS, initially as a secretary in Clinical Psychology and a few years later becoming a PALS officer. In 2007 I made the radical decision to study full time for a degree in Philosophy and Ethics which I funded by working as a weekend call handler for the GP Out of hours service. This allowed me to study and maintain my role as NHS employee until I retired in 2020. I graduated in 2010 and began attending as a lay member on Research Ethics committees at Keele and Staffordshire Universities. Whilst enjoying my lay member duties I still had free time during the week so I became a volunteer at the patient information centre (PIER) at the Haywood Hospital where I learned about the LINK group at Keele University. I applied and became a member which encouraged my ongoing PPIE involvement and my contribution to promoting patient and public presence throughout the research journey.

Jenny Lench

Involvement Manager
Midlands Partnership NHS Foundation Trust (MPFT)

“It is key for the involvement of service users and carers in Trust activities to be meaningful and that as a result, the Trust is able to demonstrate tangible impact as a direct result”.

Working in partnership with Clinicians, the Impact Accelerator Unit at Keele University, MIND and together with service users, carers and volunteers for the past12 months has been truly inspirational.

The project aim was to work on an idea to improve our understanding of those with mental health problems and persistent back and neck pain.   We held a Community of Practice which helped us to understand the problems and co-create solutions which were captured from patient experience of our services.  One of the ‘pinch points’ identified was – “what is available to me after my appointment?” Therefore our co-created solution was a Repository of Community Services which could in turn transfer onto an online offering.

In true co-production style we started with a blank canvas looking at the local support groups available which then quickly progressed to frame our repository around The 5 steps to wellbeing; to talk about problems, be active, be creative, eat well and sleep well.  Little did we know that in March 2020 change would be ahead with the pandemic.

However, along the way we have adapted to change and have supported each other through this really difficult time. Building upon relationships to finding new friends. Growing in confidence, learning, leading which truly demonstrates our commitment to living our values.

Lel Proctor

Service Design & Development Manager Mind

Susan Roberts

Public Health Specialty Registrar, MFPH, MRCGP

Dr Susan Roberts is a Public Health Speciality Registrar and has been working in public health for almost 10 years now. She has worked for councils, the NHS, Public Health England and the National Institute of Health and Care Excellence. She has also taught public health to future doctors at Keele Medical School. She originally trained as a general practitioner and worked in general practice until 2017. This experience led to her passion for promoting wellbeing and preventing ill health through proactive, systematic, evidence-based and collaborative approaches. As a public health specialist, Susan has a particular interest in the interactions between physical, mental wellbeing and social wellbeing and is delighted to be involved in the BeeFree project.

Jason McDonald

Senior Cognitive Behavioural Therapist
North Staffordshire NHS Talking Therapies Services

My name is Jason McDonald. I am a Senior Cognitive Behavioural Therapist in a North Staffordshire NHS ‘talking therapies’ service (Improving Access to Psychological Therapies). My specific clinical and research interests focus on the provision of talking therapies for people living with both physical health problems and anxiety and/or depression.

My clinical background is in mental health. I joined the NHS as a mental health nurse in 2001 and worked in a variety of clinical settings until 2005. I subsequently trained as a cognitive behavioural therapist and since 2007 I have worked in talking therapies services treating a range of anxiety problems, depression, with and without long-term physical health difficulties. I am currently in the final stages of completing my research Doctorate which has focused on the role of psychological therapies for people with physical and mental health difficulties.

BEEFREE COMMUNITY

Jessica Tunmore

Senior Research Assistant & PPIE Research LeadMidlands Partnership Foundation NHS Trust

Jessica is a Senior Research Assistant in the academic department. Jessica is also Patient and Public Involvement and Engagement lead for research. Jessica graduated with a BSc Psychology Counselling and Therapies from the University of Bedfordshire in 2016 and went on to complete a MSc Psychology in Clinical Practice at Nottingham Trent University in 2017. Jessica has since worked in forensic services as psychosocial substance misuse practitioner and an assistant psychologist. Jessica’s research interest is in severe and enduring mental health difficulties, and is hoping to complete the Doctorate of Clinical Psychology in the future. Jessica is currently a senior research assistant in the academic research department at MPFT. Jessica works closely with Professor Saeed Farooq in his various areas of research, including in Global mental health issues, and treatment of schizophrenia in Low and Middle Income Countries.

Kanta Sandhu

Research Group Member
Keele University Medical School

I am a Research User Group member at Keele University Medical School, in addition my role as a service user working with students and staff alike, in the learning and teaching environment of universities, within healthcare courses.

It was great to be invited to be part of this project as it is the first involvement I’ve had in healthcare animation.

There were so many things I enjoyed, been part of the project, the team was so welcoming and warm, no question or comment was ignored, the inclusivity was heart-warming as sometimes you can get lost amongst the technical and complexities of the project.

The communication was great and time was given to process developments, which was really helpful for me as I have a long term condition that hinders my cognitive function and memory.

I am so grateful to have been part of this project, I learnt so much about the message and the messengers !(Bees)

David Bengry

Physiotherapist

I’m David, I qualified as a Physiotherapist in 2006. Since then the majority of my working career has been in either Mental Health or Older Adult services. I am very passionate about the impact that a person’s physical health has on their mental wellbeing and how one impacts upon the other.

It has been an absolute pleasure to have been a part of this exciting journey and contributing to the development of the BeeFree campaign over the past 12 months. It has been great collaborating with a variety of different professionals from different backgrounds – sharing thoughts and ideas about this project. I hope that many service users, families, friends and fellow clinicians find the BeeFree resources helpful and that it can contribute in a small way to their recovery.

Jessica Arthan

Physiotherapist

Hi, I’m Jess, I’ve worked as an inpatient physio in a mental health setting for 5 years now. Watching the BeeFree project come together has been a really interesting and exciting process and something I’ve not been a part of before. I’m looking forward to seeing the positive impact it will have on not only our patients (many of whom suffer from chronic pain alongside their mental health conditions) but also the wider population – I think there is great potential for anyone who sees the project to find benefit from it!”

Jane Hall

Patient and Public representative

Jane Hall has been working with Keele University for over 2 years giving the patient/public perspective to research and implementation projects, mainly in the areas of musculoskeletal and mental health.  She has a long history of back pain which, 3 years ago, resulted in her early retirement from the Police Force.  “I feel it is essential to take personal responsibility for managing my health and well-being on a daily basis.  In doing so, I can continue to do the things in life that I enjoy, which includes gardening, yoga/Pilates and up-cycling furniture.”

John Gibson

User Engagement Co-ordinatorNorth Staffordshire Mind

Mike Brooks

Patient and Public representative

Mike is a member of the Research User Group (RUG) and Lay Involvement in Knowledge Mobilisation group (LINK), in the Impact Accelerator Unit, Keele University. He has recently been appointed as the first Physical Health Peer Support Worker in the Midlands Partnership NHS Foundation Trust. Other roles include; a lay contributor to the School of Medicine research committee; Public Contributor to the Applied Research Collaboration – West Midlands (ARC-WM) long term illness theme; Member of the Haywood Foundation at the Haywood Hospital, Burslem where Mike is a service user and has been for over a decade.

Retired for 10 years, Mike’s professional background is in Research and Development in an industrial chemistry arena and has been owner and Managing Director of a Leadership & Management development company as well as Managing Director of a Marketing & Business Development business.

Greg Bicker

Advanced Physio Practitioner

Greg Bicker is an Advanced Physio Practitioner working in the Midlands Partnership NHS Foundation Trust’s North Staffordshire Musculoskeletal Interface Service, at the Haywood Hospital Rheumatology centre, recognised by the Kings Fund as an exemplar for musculoskeletal and rheumatological care. As part of his role, Greg works as a First Contact Physiotherapy Practitioner, embedded within a local Primary care network and is involved in development and provision of first contact training. Greg’s previous experience is primarily in NHS Orthopaedics, notably providing leadership during the integration in orthopaedic services between University Hospital of North Staffordshire and the now dissolved Mid Staffordshire NHS foundation trust. Alongside his clinical duties, Greg has a key role in delivering undergraduate and masters level teaching around musculoskeletal assessment and management in rheumatology for Keele University, from where he graduated in 2009.

Patient Information Education and Resource centre volunteers,

(Haywood Hospital, Burslem, Stoke-on-Trent)

MIND Health Foundation

Q Lab team

BeeFree is a collaboration between patients and professionals at the following organisations

Our Journey

In our clinical roles, we see people on a daily basis with muscle and joint pain. We hear and see the impact that this can have on someone’s physical and mental health.

Alongside the Q Community we had the opportunity to try and develop some resources that might help. The big difference with this project was that we wanted to do this alongside people with experience of pain, hospital volunteers, national charities such as MIND and clinicians. This sounds such an obvious thing to do, but it really doesn’t happen as often as it should.

Together, we looked at the experience that patients and clinicians have when they are in clinic. We wanted to understand what caused anxiety and where we could make improvements. In our sessions together we discovered that the time waiting for an appointment could be stressful. Also there was a lack of understanding around the link between mental and physical heath and what was available locally to help.

Together we then came up with three ideas:

1

Training package

A training package for clinicians and volunteers to improve their awareness of the links between mental and physical health

2

Local Resources

A collection of local resources that anyone could access to help their physical or mental health.

3

Animation

An animation that could share positive and useful information

What you will find on the website are these three innovations. Remember they have been co-designed with patients, people with lived experience of muscle and joint pain, National and local, Charities, The Q Community and members of Keele University Impact Accelerator Unit.

This work would not have been possible without the support of the Haywood Foundation, MIND, MPFT.

Do you need more support?

I’d like BeeFree to contact me so that we could talk about other resources I’d find helpful.